Teething Hell

If you're friends with me on facebook, you might have noticed my status today said "My child is a napping disaster. Apparently there is something evil about teething because I'm pretty sure we're going to have to perform an exorcism to get her to sleep."

And that about sums up my day.

Well, there was no exorcism, but luckily with some motrin, and some homemade organic blueberry yogurt popsicles (thanks for the idea Mama Dub over at Life in the Dub Lane) Lillian made it through the day even without naps and a physical therapy session with her new ankle foot orthotics. I'm pretty sure Lillian's crying nearly brought the PT to tears because it's the first time she's actually cried for her rather than fussed, and it nearly broke both our hearts.

I tried to take a picture of her two new shiny TOP teeth but I got this instead...yes, she's licking the camera
And why am I not surprised her top teeth came in first?  She really likes to be different.

Other than this teething hell, many new developments have been happening with Lillian.  She is  ::THISCLOSE:: to crawling.  She crawls backwards (still) and can go from laying down to sitting up.  She can go from sitting up to laying down.  She can turn in circles, roll, and back up wherever she is... but no forward crawling.  It's coming.

She plays music on her drums and expects us to dance to it. If we don't dance she doesn't laugh, and well... that's just not fun.  We like to amuse her so we dance. When the music stops we say "UH OH" and she laughs hysterically then plays the drums to make us dance again.  We are officially her puppets.

She's pretty much mastered the straw cup.  She's also managed to take 100% of her feedings by mouth most days.  The days she doesn't is probably our fault (and by "our" I mean Phil's) by not being patient enough to try again later. (Ok, I'll give him some credit, he is just trying to get to work on time and let me sleep in.)

She's on the move so much it's nearly impossible to change her diaper.  It probably looks about the same as lassowing a calf.  I'll admit I don't know much about calfs, but I do have a pretty adorable cowgirl :).

I'm sure there's more that I'm leaving out.  We're getting her 2nd Early Intervention evaluation sometime in the next month or so, and they will rate her development on a chart.  Not that those stupid charts mean a whole lot, but it does put her progress into perspective.

Next month is also a big month for us because not only is it Lillian's 1st BIRTHDAY (which will be celebrated with a Goldfish themed party!!! - details to come soon) but we are also going to Washington D.C. to attend the Annual Foundation for Prader Willi Research Conference.  I'm beyond excited to meet so many other great proactive families and their amazing kids.  Beyond excited.  I've met a handful of families with children that have PWS, but they were all older and had not received the same type of early intervention Lillian has received. I'm looking forward to meeting some more children close to her age that have been treated from early diagnoses.

Oh and, remember that garden I blogged about?  I found out the vegetables will keep growing even if you neglect to pick them in time.

You could even end up with squash and zucchini the size of a 10 month old baby

So to end this blog with more random ramblings, this song has been stuck in my head for two weeks.  The funny thing is, only in the middle of the night have I been able to remember the words.  At 3am when Lillian moves her pinky and I hear the monitor and wake up, or my bladder tells me to wake up first... I can't get this song out of my head. 

Finally today I remembered enough words to google it.  And here you have it.

Matt Redman - You Never Let GO lyrics | LyricsMode.com

"Oh no, You never let go

Through the calm and through the storm

Oh no, You never let go

In every high and every low

Oh no, You never let go

Lord, You never let go of me"

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