So her endocrinologist decided to put growth hormones on hold. This is unacceptable for us so we are getting a second and third opinion. This means we'll be taking a trip to Florida to visit with a more experienced doctor, but knowing that Lillian is in the best care is all that matters to us.
Even though she screamed and faught the sleep study, when we got home she had physical therapy and did SO well! The therapist was impressed with her, and I was impressed she was even willing to let the therapist work with her. She's such a good baby.
Tomorrow we're attending the PWS Indiana chapter meeting in Indianapolis. I'm excited to meet the other families and children with PWS. As excited as I am to meet other people in our situation, I'm really nervous too. You never know if something like this is going to make you feel better or worse... Hopefully it makes us feel better.
Since I've been slacking, here are some pics!
Daddy's way of keeping me entertained....